Embrace the hospice journey
a caregiver’s journal
This space is designed to assist anyone who is a caregiver of a hospice patient.
To possibly lift some of the burden or stress that can be overwhelming during the end of life process. This journal can give you the ability to put what you need as a caregiver of a hospice patient and your loved one into one place. Organize your thoughts, create a keepsake, prepare for one day and the next, keep medications schedules in order and to be able to spend quality time with your loved one and find rest at the end of each day. May you find peace.
Questions for you should ask Hospice:
What is the mission of the Hospice agency?
Does the Hospice have local staff?
What is the typical response time for calls and visits?
What type of caregiver support is provided?
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What type of bereavement support is provided?
Discuss policies and procedures for emergency situations, time of death, etc.
Are Chaplains, Social Workers, Volunteers provided?
What are the costs of Hospice care? What is included in the costs? Will our insurance cover Hospice care?
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– Adnan Sami
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Meet Jennifer Lane-Riefler, the author.
About the Author
I have learned much from the passing of my loved ones. Recently I lost a dear friend to lung cancer. Her husbad was her caregiver. He did everything within his power to care for her during her illness. When the family decided it was time for hospice I helped him interview and choose the hospice that best fit their needs. I helped him to express his specific needs to the hospice and ask hard questions. I knew the couple well and wanted to do my very best to help during her final days. I bought a notebook and set it up to help him keep track of medications, pain, concerns, etc. It became a useful tool to him and the hospice staff often referred to it. It helped him monitor her every need. I was holding her hand when she passed. I experienced a great loss at her death, but being at her side will always be in my heart as a very important gift to me. I am honored to knowthat she felt safe enough with my presence to let go.
When I arrived home late the night she passed, I sat down and designed this journal.